Turn Hope Into Action
A Cure For Everett
Everett is a brave little boy living in Austin, Texas, with an ultra-rare neurodevelopmental mitochondrial genetic condition caused by a harmful change in his HK1 gene that occurred spontaneously. Fewer than 50 cases are known worldwide, there is no cure (yet!), and the condition carries a frighteningly high mortality rate.
He has the most severe known variant, which disrupts vital systems, especially his neurological and respiratory function.
A Cure for Everett was created to raise the $3 million needed to fund the scientists and doctors working urgently to understand this condition, develop a treatment and cure, and support Everett’s ongoing medical needs and living expenses.
With your help, we can turn hope into action. Join Team Everett and change the trajectory of his life and other kids like Everett.
Turn Hope Into Action
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Turn Hope Into Action *
Three Ways To GIVE
DONATE TO RESEARCH & DEVELOPMENT
100% of the funds will be used for A Cure for Everett’s initiative and the research and development of a cure for Everett’s HK1 genetic condition.
A Cure for Everett is currently operating under fiscal sponsorship of Rare Village Foundation, a 501(c)(3) nonprofit organization and your donation is tax-deductible within the guidelines of U.S. law.
DONATE TO ONGOING EXPENSES
Support Everett’s medical care, therapies, equipment, travel and living expenses through his GoFundMe created by his Mom’s best friend.
These donations are not tax deductible.
SHOP OUR MERCH
Shop our merch store where 100% of the proceeds go to supporting Everett’s ongoing expenses.
These purchases are not tax deductible.
For offline donations, please make checks out to Rare Village Foundation with A Cure for Everett on the memo line.
Checks can be mailed directly to: Rare Village Foundation at 6808 Old Glory Ct., McKinney, TX 75071, EIN: 83-4699994
MORE WAYS TO SUPPORT
AMPLIFY EVERETT’S STORY
Awareness fuels progress. Sharing Everett’s story helps connect researchers and advocates who can accelerate research and change.
Follow us on Instagram to stay updated on Everett’s journey!
PRAY FOR EVERETT
For those who are called to it, prayer is a powerful way to support Everett’s path forward and the work being done to change his future. Pray for Everett’s strength, comfort, and health progress, and for wisdom for the doctors and scientists working towards a cure.
Contact Us
Hi Ya’ll! Have questions or interested in working together? Fill out some info and we will be in touch shortly. We can’t wait to hear from you!